Expert's Corner

 

 

Ask the Founder


VBF Announces "Ask The VBF Founder." Linda Rozell-Shannon is the leading lay expert (non doctor) in the world on the subject of vascular birthmarks.

 

Babies with Birthmarks™

Our newest program - guidelines for physicians to follow to diagnose and treat vascular birthmarks with the earliest intervention.

Recent Medical Papers and Research

New Research Out of Boston


Dynamic Cooling Paper by Dr. Nelson and Wangcun Jia


Arterio-venous Malformations Powerpoint Presentation


PWS paper by Dr. Mihm and L. Rozell-Shannon


SWS Glaucoma Facts by L. Rozell-Shannon and Dr. Fay

Test for Birthmarks

Psychosocial and Emotional Issues for Individuals with a Port Wine Stain

Simple things you can do to manage KTS (Dr. Delfanian and Linda Shannon)

Ulcer Care and Treatment (pdf)

Find a Physician

 

Dr David Lord
Radiology Department
Vascular Birthmarks Program
Childrens Hospital Westmead
Locked Bag 4001
Westmead NSW 2145
Sydney Australia
www.chw.edu.au/site/directory/entries/vascular_birthmarks.htm


Dr. Tony Moore
Adelaido Plastic Surg. Assoc.
Memorial Hospital North Adelaide,
S. Australia 8267-1800


Dr Philip Bekhor
Director, Laser Unit
Royal Children's Hospital
Melbourne, Australia
and
Laser Dermatology
503 Elgar Rd
Box Hill, Melbourne
Victoria
Phone 61 3 9890 1844
www.laserdermatology.com.au


Has your baby developed infantile hemangioma, also known as strawberry birthmark?

Three centres in Australia are conducting a research study looking infants with proliferating infantile hemangiomas (IHO) that require medication. This study will evaluate the use of an investigational drug, V00400 SB (also known propranolol) in the treatment of hemangiomas.

THIS STUDY MAY BE APPROPRIATE FOR YOUR CHILD IF HE/SHE:
· Is between 35-150 days old
· Has at least one hemangioma 1.5 cm in diameter
· Has not received previous treatment for hemangioma.

Infantile hemangiomas (IH) are red blemishes or bumps made up of small blood vessels. They affect around 3 to 10% of children born, and may appear on the head, face and neck in approximately 50% of cases. They are often not present at birth and usually become more obvious in the first weeks thereafter. Although many IHs shrink and disappear without medical intervention by the age of 10, some do not and may cause residual lesions and/ or complications including vision and airway obstruction. Current IH treatments include surgery, laser treatment, cryotherapy, corticosteroids and vincristine. The HEMANGIOL study looks to explore a new possibility by determining whether a treatment that is already licensed and used for various conditions in adults can reduce hemangioma growth in infants aged 35 – 150 days. The HEMANGIOL study will compare a placebo to propranolol in approximately 450 children with IH worldwide.

If you wish your child being seen to evaluate potential participation in this clinical trial, please contact:

- Sydney Children’s Hospital (Randwick - Sydney) - Dr Orli Wargon
Name of the person to contact : Susan Smith
Phone number: 9382 0512 or 0410 341 114
Email: susan.j.smith@sesiahs.health.nsw.gov.au

- Royal Children’s Hospital (Melbourne) - Dr Roderic Phillips
Name of the person to contact : Rod Phillips
Phone number: 03 93455522
Email: rod.phillips@rch.org.au

- Box Hill Hospital (Box Hill - Melbourne) - Dr John Su
Name of the person to contact : Althea Barr
Phone number: 9094 9544 or 0448 040 185
Email: althea.barr@monash.edu

Parent's
Corner



Information for Parents

DOA Logo
Don't Forget!
Every Day is a Day of Awareness for VBF!
Visit the VBF International Day of Awareness Website:
birthmark.org/awareness


Good Search

What if the VBF earned a penny every time you searched the Internet? Now it can! GoodSearch.com is a new Yahoo-powered search engine, with a unique social mission. Every time you use GoodSearch, money is generated to support the mission of VBF. Just go to www.goodsearch.com and be sure to enter the Vascular Birthmarks Foundation as the charity you want to support. The more people who use this site, the more money we'll earn so please spread the word! Go to http://www.goodsearch.com

If you think your child has a hemangioma Click Here.
hemangioma
If you think you or your child has a port wine stain Click Here.
Before and after of port wine stain
If you think you or your child has a venous malformation Click Here.
Before and after of venous malformation

Chapters of the VBF

VBF
VBF Europe
VBF Russia
VBF Spain
VBF Peru
VBF Latin American
VBF New Zealand
VBF Australia
VBF India
VBF Africa
VBF Asia
VBF Poland
VBF Philippines
VBF Vietnam
VBF Israel
Sturge-Weber Syndrome Community
SWSC-Canada

Partners

Anomalie Vasculaire Site for French speakers worldwide, and friend of VBF that offers support and information about vascular birthmarks


Publications for Parents:

  • VBF Vascular Birthmarks Brochure - Download and Print - A comprehensive brochure describing all vascular birthmark types, syndromes and treatment options. To print, click here (you will need the Acrobat Reader to view and print this document).
  • Doctor Visit Survey Have you been seen by a doctor to assess a vascular birthmark? Please click here and complete our survey. This survey will be used to provide feedback to the doctors about the information and treatment they provide to families affected by a vascular birthmark. Complete your survey and mail to Corinne Barinaga, c/o VBF Director of Information Services, PO Box 106, Latham, NY 12110.
  • Before you visit, email, or speak to a birthmark specialist, be sure to read our Checklist for Parents!
  • Dr. Rosen's Vascular Birthmark Information for Parents
  • Simple things you can do to manage KTS (Dr. Delfanian and Linda Shannon)

You will need Adobe's Acrobat Reader to open and print the pdf documents. If you do not already have it installed, you can find it here.

You will need Microsoft's Word to open and print the Word Documents.

RECRUITING SUBJECTS FOR A RESEARCH STUDY ON FACIAL BIRTHMARKS