Expert's Corner

 

 

Ask the Founder


VBF Announces "Ask The VBF Founder." Linda Rozell-Shannon is the leading lay expert (non doctor) in the world on the subject of vascular birthmarks.

 

Babies with Birthmarks™

Our newest program - guidelines for physicians to follow to diagnose and treat vascular birthmarks with the earliest intervention.

Recent Medical Papers and Research

New Research Out of Boston


Dynamic Cooling Paper by Dr. Nelson and Wangcun Jia


Arterio-venous Malformations Powerpoint Presentation


PWS paper by Dr. Mihm and L. Rozell-Shannon


SWS Glaucoma Facts by L. Rozell-Shannon and Dr. Fay

Test for Birthmarks

Psychosocial and Emotional Issues for Individuals with a Port Wine Stain

Simple things you can do to manage KTS (Dr. Delfanian and Linda Shannon)

Ulcer Care and Treatment (pdf)

RECRUITING SUBJECTS FOR A RESEARCH STUDY ON FACIAL BIRTHMARKS
The Effect of Facial Hemangiomas on Psycho-Social Development

If you are 14 years old or over and would be willing to answer three short questionnaires, please volunteer for this research study.

This study is investigating the psycho-social impact of growing up with an hemangioma on the face.

You must meet the following criteria to be in the study:

Your birthmark must have been diagnosed as an hemangioma (either deep, superficial or mixed), NOT a Port-Wine Stain or other type of malformation.
You did not receive any treatment prior to age 14 to remove, lighten or reduce the Hemangioma.
It must have covered at least 10% of the face (size of an egg) and been visible to other people.
You must have attended a public or private school. (not home schooled)
You must be able to fill out the questionnaire without help from another person.
All participants must sign a consent form, and if you are under 18 years of age a parent or legal guardian must sign and approve your participation in the study.

All information is strictly confidential. Your answers will be sent to the scoring coordinator anonamously (without your identity disclosed).

Elissa Rifkin, M.Ed.
Principal Investigator
studyvb@aol.com


 

Parent's
Corner



Information for Parents

DOA Logo
Don't Forget!
Every Day is a Day of Awareness for VBF!
Visit the VBF International Day of Awareness Website:
birthmark.org/awareness


Good Search

What if the VBF earned a penny every time you searched the Internet? Now it can! GoodSearch.com is a new Yahoo-powered search engine, with a unique social mission. Every time you use GoodSearch, money is generated to support the mission of VBF. Just go to www.goodsearch.com and be sure to enter the Vascular Birthmarks Foundation as the charity you want to support. The more people who use this site, the more money we'll earn so please spread the word! Go to http://www.goodsearch.com

If you think your child has a hemangioma Click Here.
hemangioma
If you think you or your child has a port wine stain Click Here.
Before and after of port wine stain
If you think you or your child has a venous malformation Click Here.
Before and after of venous malformation

Chapters of the VBF

VBF
VBF Europe
VBF Russia
VBF Spain
VBF Peru
VBF Latin American
VBF New Zealand
VBF Australia
VBF India
VBF Africa
VBF Asia
VBF Poland
VBF Philippines
VBF Vietnam
VBF Israel
Sturge-Weber Syndrome Community
SWSC-Canada

Partners

Anomalie Vasculaire Site for French speakers worldwide, and friend of VBF that offers support and information about vascular birthmarks


Publications for Parents:

  • VBF Vascular Birthmarks Brochure - Download and Print - A comprehensive brochure describing all vascular birthmark types, syndromes and treatment options. To print, click here (you will need the Acrobat Reader to view and print this document).
  • Doctor Visit Survey Have you been seen by a doctor to assess a vascular birthmark? Please click here and complete our survey. This survey will be used to provide feedback to the doctors about the information and treatment they provide to families affected by a vascular birthmark. Complete your survey and mail to Corinne Barinaga, c/o VBF Director of Information Services, PO Box 106, Latham, NY 12110.
  • Before you visit, email, or speak to a birthmark specialist, be sure to read our Checklist for Parents!
  • Dr. Rosen's Vascular Birthmark Information for Parents
  • Simple things you can do to manage KTS (Dr. Delfanian and Linda Shannon)

You will need Adobe's Acrobat Reader to open and print the pdf documents. If you do not already have it installed, you can find it here.

You will need Microsoft's Word to open and print the Word Documents.

RECRUITING SUBJECTS FOR A RESEARCH STUDY ON FACIAL BIRTHMARKS

Mission Statement: An international charitable organization that networks families affected by a vascular birthmark, tumor, or syndrome to the appropriate medical professionals for evaluation and/or treatment and provides informational resources as well as sponsors physician education, research, and programs that promote acceptance for living with a birthmark.

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DISCLAIMER
Information accessed through the VBF is presented in summary form in order to impart general information relating to the diagnosis and treatment of vascular birthmarks. Such information is not complete and should not be used as a substitute for a consultation or visit with your physician or other health care provider. Information accessed through VBF website is not exhaustive and does not cover every aspect of vascular birthmarks. VBF makes no warranty as to the information's completeness, reliability or accuracy. Should you have any health care related questions regarding this matter, please see your physician or other health care provider promptly.

Information accessed through the VBF website is provided "AS IS" and without warranty, express or implied. All implied warranties of merchantability and fitness for a particular use or purpose are hereby excluded. VBF shall not be liable under any theory or indemnity. In no event shall VBF be liable for any damages, direct or indirect, and all other damages, direct or indirect, special, incidental, consequential or punitive, are hereby excluded even if VBF has been advised of the possibility of such damages.

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Founded by:
Linda Rozell Shannon
President / Founder
© 2000-2007, by Linda Rozell Shannon. All Rights Reserved.
VBF is a fully approved not-for-profit. Your donations are tax deductible.
Federal Tax ID 16-1515227

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